Tag Archives: #maroonformaisie

  27th Cleveland Clinic Children’s Gala

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A few weeks ago I had the privilege of attending the Cleveland Clinic’s 27th Annual Children’s Gala. The village of doctors, patient advocates, nurses and community had selected my friend Maisie Nowlin, as one of this years two Courage Award recipients.

You see, over the last two years my friends Meg, Ryan and little Maisie have been in and out of Cleveland Children’s with a very rare disease called Aplastic Anemia. She has had one scare after the next, a bone marrow transplant and so many experimental drugs but all in all Maisie kept the faith, was supported by her CLE community and wore her heart on her sleeve. This girl is a fighter and we were there that evening to celebrate her and her entire loving family.

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Cleveland Clinic Children’s is dedicated to medical, surgical and rehabilitative care of infants, children and adolescents. The staff uses the latest technology and most recent research to achieve the best possible outcomes. Children’s has more than 300 pediatric specialists who are leaders in research for cardiac care, neurological conditions, digestive diseases and other conditions. More than 80 of their staff are annually named as “Best Doctors” by their peers. Cleveland Clinic Children’s is consistently rated among the “Best Children’s Hospitals” by U.S. News & World Report. I could go on and on…but to us, all that really mattered was that they helped our friends when they were at a loss for how to tackle such an ugly disease for their very sick daughter.

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I am happy to tell everyone that Maisie is doing well. She currently is a typical tween who is into sparkly shoes, her friends and her brothers and sister. She and her parents accepted this award with grace and humility and we couldn’t have been more proud of them and the team at Cleveland Children’s.

Thank you Dr. Rabi Hanna for hosting us that evening and thank you to your team for pouring your knowledge, heart and soul into the health of our friend Maisie. You make us all want to reach for the stars, to do better, to give more and to really see the love and passion for all people. We know that the research you have conducted in order to impact lives of your patients like Maisie would not be capable without your research grants AND without the generosity of individuals and private donors. We hope that the funds we raised that evening will help impact hundreds of other little seven year old girls like Maisie.

In the spirit of working towards curing each child-patient at Cleveland Clinic Children’s Hospital; I invite you to take time to read more about the exciting happenings (can we say new, kids-only building?!?!) and efforts at Children’s here. If you have would like to donate to furthering the research that Dr Hanna and all of the doctors at the Clinic are conducting we welcome you to make a gift here. We thank you in advance for your generosity.

  Miles for Maisie!

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Happy Tuesday friends! I hope your Halloween weekends were filled with many tricks and treats…mostly treats. Me & Mr. C enjoyed dressing up Baby Ninja and watching him devour his first taste into the world of candy…a mini twix bar. Anyhow the weekend was filled with family fun, hope you had a good one too.

Today I want to use this social space to tell the story of my friend Maisie and invite you to a super fun fundraiser for her family this Friday night.

Maisie is a 6 year old that lives in Lakewood, attends Lakewood Catholic Academy, loves princesses and her four other siblings and is the daughter of my friends Megan and Ryan. Maisie was recently diagnosed with Severe Aplastic Anemia which is a super scary and very rare blood disease. Our dear little Maisie is in need of bone marrow transplant and so her family and friends have been raising awareness for “Be the Match.org” all the while getting volunteers to take the swab test to see if anyone is a close match for little Maisie.

This past weekend over fifteen hundred people gathered at Lakewood Park to celebrate Maisie and her family through a costume parade and treat trail. It seriously was the most moving fundraiser I have ever been to. So many children, so many happy faces, such a feeling of joy and hope, we were all there for our friends and their little lady.

Please join us this Friday night, November 6th from 6-7pm at Psycle (in Westlake) as we ride together for this little friend and her family. The class is a donation ride but we would love it if you could sign up in advance to accommodate for all of our riders who want to participate. Who knows, if we have enough riders we might just convince our instructor to open up another hour class! All funds will go to the family in order to help covers all expenses they may have during these times.

At Friday’s ride there will also be BetheMatch.org take home kits for anyone who wants to be tested to see if they match Maisie. There will also be t-shirts and bracelets on hand for sale.

I look forward to seeing everyone for a good ride, make sure and wear your maroon…#MaroonforMaisie. We love you guys and are keeping you in our hearts and prayers.